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Home > Scientific AreasMethodology > mHealth - Mobile Health Technologies


mHealth - Workshop on “mHealth Evidence”

Robert Wood Johnson Foundation McKesson, Empowering Healthcare National Science Foundation, NIH

mHealth Evidence Workshop
August 16, 2011
Natcher Conference Center | NIH Campus | Bethesda MD

 

Watch video of the meeting at NIH Video Archives - mHealth Evidence

National and global scientists, policymakers, health professionals, technologists, and representatives from regulatory and funding agencies gathered on August 16, 2011 for the mHealth Evidence Workshop to discuss and identify more effective methods to generate evidence of efficacy and effectiveness for the emerging science of mobile health (mHealth). The meeting was sponsored by the Pioneer program of the Robert Wood Johnson Foundation, the McKesson Foundation, the Office of Behavioral and Social Sciences and National Heart, Lung and Blood Institutes at the National Institutes of Health, and the National Science Foundation. The overall conclusion of the meeting was that mHealth has great potential to support health and wellbeing worldwide, and, therefore, there is need to enhance the scientific foundations. mHealth tools and interventions must be backed up by rigorous scientific development, evaluation, and evidence generation to enhance meaningful innovation and best practices, and to validate tools and methods for health professionals, consumers, payers, governments, and industry.

The meeting targeted methods within the unique emerging science of mHealth, which builds on medical and clinical research, behavioral theory, human computer interaction, sensing technology, mobile systems, and statistical inference. Meeting discussants concluded that the science of mHealth must use and further develop systematic research methods adapted to the technology, clinical or program intervention, and likewise, analytic methods to process the vast amounts of streaming, tagged, complex and layered data that becomes available using mHealth technologies.

This spectrum of methods will need to include not only randomized clinical trials, potentially optimized to leverage mHealth advancements, but also alternative study designs and methodologies that ensure that research studies are able to provide timely information within a rapidly evolving field. Evaluation methods that incorporate principles of existing study methodologies, including randomization, step-wedge design, n-of-1 trials, and Practice-Based-Evidence (PBE) methodology were discussed, in addition to methods that borrow from engineering, including Multiphase Optimization Strategy (MOST) and Sequential, Multiple Assignment Randomized Trials (SMART). Ethical issues related to collection, storage and use of real-time masses of identifiable personal data were also acknowledged as topics requiring updated guidance.

As a follow-up to the workshop, participants are identifying and developing the methods needed to best generate mHealth evidence. They are forming working groups to engage the mHealth community in developing a research agenda centered on design methodology, analytic methods, and mHealth technologies. These efforts will support a rigorous and innovative health ecosystem that will deliver transformational improvements in the research and practice of health and wellbeing.


AGENDA

8:30am-8:50am Opening Remarks
Robert Kaplan, PhD, Director, Office of Behavioral and Social Sciences Research, NIH
Al Shar, PhD, Vice President Information Technology, Robert Wood Johnson Foundation
Carrie Varoquiers, MBA, MPH, President, McKesson Foundation
Misha Pavel, PhD, Director, Smart Health and Wellbeing, National Science Foundation
8:50am-9:00am

Introduction of Purpose and Goals
Santosh Kumar, PhD – University of Memphis

9:00am-10:30am Study Design Innovations I
Don Hedeker, PhD; Professor of Biostatistics – University of Chicago
Margaret Handley, PhD – University of California San Francisco
Bethany Hedt, PhD – Harvard Medical School
Deepak Ganesan, PhD – University of Massachusetts, Amherst
Richard Kravitz, MD – University of California, Davis

Moderator: Tisha Wiley, PhD – NIH Office of Behavioral and Social Sciences Research
Additional white paper authors: Sara Browne, MD; Thomas Kirchner, PhD; Marc Lara, MD
10:30am-10:45am Break
10:45am-12:15pm Study Design Innovations II
Linda Collins, PhD; Professor Human Development & Family Studies and Biostatistics – Penn State University
Susan Murphy, PhD – University of Michigan
Bonnie Spring, PhD – Northwestern University
David Mohr, PhD – Northwestern University

Moderator: Bill Riley, PhD – NIH National Heart, Lung, and Blood Institute
Additional white paper authors: Inbal Nahum-Shani, PhD; Dallas Swendeman, PhD
12:15pm-12:30pm Break & Lunch
12:30pm-2:00pm Reality Mining, Machine Learning and Artificial Intelligence
Amy Abernethy, MD; Associate Professor of Medicine – Duke University
Tanzeem Choudhury, PhD – Dartmouth University
Greg Norman, PhD – University of California, San Diego
Vladimir Shusterman, MD – PinMed, Inc.

Moderator: Audie Atienza, PhD – Health and Human Services
Additional white paper authors: Richard Katz, MD
2:00pm-3:30pm Infrastructure Innovations
Deborah Estrin, PhD; Professor of Computer Science – University of California, Los Angeles
Craig Lefebvre, PhD – RTI International
Susan Horn, PhD – Institute for Clinical Outcomes Research
Robert Evans, PhD – Google, Inc.
Garrett Mehl, MD – World Health Organization

Moderator: Misha Pavel, PhD – National Science Foundation
Additional white paper authors: Janet Brigham, PhD; Stephen Intille, PhD; Charlene Quinn, PhD; Ida Sim, MD; Donna Spruijt-Metz, PhD
3:30pm-3:45pm Break
3:45pm-5:00pm Discussion to Generate Research Agenda
Al Shar, PhD – Robert Wood Johnson Foundation & Panel Leads
5:00pm-5:15pm Concluding Comments and Next Steps
Santosh Kumar, PhD – University of Memphis
5:15pm-6:30pm Post-meeting reception

Organizing Committee:
Santosh Kumar, PhD, University of Memphis (Chair)
Audie Atienza, Health and Human Services
Wendy Nilsen, PhD, National Institutes of Health
Misha Pavel, PhD, National Science Foundation
William Riley, PhD, National Institutes of Health
Albert Shar, PhD, Robert Wood Johnson Foundation
Carrie Varoquiers, McKesson Foundation
Tisha Wiley, PhD, National Institutes of Health

About the Robert Wood Johnson Foundation and the Pioneer Portfolio:
The Robert Wood Johnson Foundation focuses on the pressing health and healthcare issues facing our country. As the nation's largest philanthropy devoted exclusively to improving the health and healthcare of all Americans, the Foundation works with a diverse group of organizations and individuals to identify solutions and achieve comprehensive, meaningful and timely change. Projects in the Pioneer Portfolio are future-oriented and look beyond conventional thinking to explore solutions at the cutting edge of health and healthcare. For more information, visit our website at www.rwjf.org/pioneer.

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